Families need realistic, actionable information with which they can make a wide range of decisions over the lifespan of their loved one with intellectual and developmental disabilities (ID/DD). This is the mission of The Arc of Northern Virginia’s Transition POINTS Program, whose key features include:
Helping across the lifespan. Transition POINTS provides parents, siblings and other caregivers with the information and support they need to make decisions at key points across the lifespan of their loved one with ID/DD. Examples of such transition points include:
• Receiving a diagnosis and entering an early intervention program
• Starting school and advocating for a free and appropriate public education
• Preparing for and transitioning out of the school system
• Securing employment and a place to live outside the caregiver’s home
• Handling the decline and/or death of the primary caregiver and aging with a disability
Making decisions easier. Caregivers provide the bulk of the psychological, physical and financial support to their loved one with a disability. Making it easier to make critical decisions is essential to the Transition POINTS program. Resources include or will include:
• Online toolkits, guides, and fact sheets
• Interactive webinars for parents and siblings
• Workshops on specific topics such as financial planning and securing appropriate educational opportunities
• Downloadable podcasts
• Streaming video for conferences and workshops
Working with partners. To increase awareness of the program, The Arc of Northern Virginia reaches out to professionals and organizations with relevant expertise and those with which parents and caregivers have constant contact: We partner with:
• Other nonprofit disability organizations such as the Autism Society of Northern Virginia and the Down Syndrome Association of Northern Virginia, among others
• Employers, especially human resources staff
• Physicians, dentists, social workers, speech therapists, and other professionals
• Special education teachers, transition specialists, and school-based therapists
• Financial planners, insurance companies, and attorneys
• Local social service agencies, therapeutic recreation programs, and faith-based organizations
Working with our members. The Arc of Northern Virginia has formed a number of working groups that have helped us develop resources and informational materials focused on:
• Early Intervention
• School to Work
• Aging with a Disability
Transition POINTS Guides
As a first step in Transition POINTS, we have written six guides to address important issues that parents should consider at each of these important life stages. The guides are designed to help you recognize opportunities, weigh options, and work through decisions. Checklists, timelines, worksheets, and links to other resources are included wherever possible. Each document has also been reviewed by a task force of parents and professionals with relevant experience and expertise.
Although each guide addresses issues related to a specific phase of life, each repeats information parents and caregivers need to know whether their loved one is two, 22 or 62 years old: how to protect your loved one’s financial future, how to apply for benefits, and where to go for more help, these comprehensive booklets help guide you through the process to find services and programs for you child or adults with a disability.
Early Intervention – Starting Life with your Child with a Disability
Special Education Guide – Getting the Most from Special Education
Transition – Securing a Future for your Child with a Disability
Employment – Entering the World of Work
Housing – Finding a Home in Korean
Aging – Aging with a Disability
Transition POINTS Workshops
Transition Series 2016
Critical School-to-Community Transition Planning for Youth with Disabilities and their Families. Concurrent session workshops for parents or caregivers along with your transitioning youth. Fall Session: September 17, October 15, and November 14. Attendance at all three sessions is required for the parent/caregiver but optional for the student.
Marymount University Students and transition participants talk about transition and The Arc of Northern Virginia’s Transition Series
Life Planning Tools
These intensive workshops and webinars provide families with an understanding of several important program to help them make decisions for future planning.
Ongoing, Information sharing to help you navigate the complex disability systems. Informal over your lunch hour.
First Fridays Futures Planning
Tia Marsili, Director of Trusts, presents to families, siblings and adults with disabilities and others interested in learning about special needs trusts and other tools to consider when developing a plan for the future.
For further information on The Arc of Northern Virginia’s Transition POINTS program contact:
Diane Monnig at 703-208-1119 x118
For information about sponsorship opportunities to help support the expansion of Transition POINTS, please contact Howard Stregack, Director of Development, at firstname.lastname@example.org or 703-208-1119 x102.